Cancer Charities & Organisations

Breast Cancer Care

Breast Cancer Care wants every person affected by breast cancer to get the best treatment, information and support. We combine the personal experiences of people affected by breast cancer with clinical expertise to provide information and support through our helpline, website and other services.

We hold ‘Moving Forward Courses’ in various locations across Yorkshire for people who have recently finished treatment for primary breast cancer. These free courses take place across 3 or 4 weeks and aim to provide information, support and professional guidance on how to cope with and adjust to life after treatment. Guest speakers who are experts in their field deliver topics such as: healthy eating, exercise, managing menopausal symptoms and adjusting and adapting after a diagnosis of breast cancer.

We also run ‘Living with Secondary Breast Cancer’ groups in Leeds, Sheffield, York and Harrogate. These groups meet on a monthly basis and people can attend as few or as many as they like, refreshments are provided free of charge including lunch on longer sessions. The meet ups are facilitated by a counsellor and offer a chance for attendees to talk to other people who understand what it is like to live with a secondary breast cancer diagnosis. Every other month a guest speaker delivers a session around topics relevant to the group, such as: clinical trials, side effects of treatment, cancer related fatigue and relationships and communications.

To register for any of our services or to find our more information please call 0345 077 1893 or visit our website: www.breastcancercare.org.uk

 

 

 

Ellie’s Friends

Ellie’s Friends supports adults living with cancer throughout the UK to receive free products & services, to offset some of the financial and psychological impact of a cancer diagnosis.

From mailed CD’s, books and beauty products, to spa days, hotel stays and theatre tickets, they are always on the look out for local businesses who might want to help adults living with cancer in their community. Ellie’s Friends have just merged with Maggie’s Centres, who are about to build a centre in Leeds, and are very keen to hear from any West Yorkshire businesses who might want to make donations of products or services.

All “freebies” are listed here: www.elliesfriends.org/freebies and promoted extensively via Ellie’s Friends and Maggie’s social media channels and websites. If you’d be interested in getting involved you can email info@elliesfriends.org for more information!

 

 

About Hope for Tomorrow

Hope for Tomorrow is a dedicated charity, bringing cancer care closer to patients’ homes via our Mobile Chemotherapy Units (MCUs).

As a cancer charity, we understand that time is a crucial factor for patients, and in 2007 we launched the world’s first ever MCU to bring vital cancer care closer to patients, enabling them to spend more time with family, friends and loved ones.

We develop, build, provide and maintain MCUs to support patients who are going through Chemotherapy by alleviating the stresses and strains of travelling for appointments, along with reducing hospital waiting times.

We work in a unique partnership with the NHS helping to ease capacity challenges at hospital trusts. We now have 10 MCUs operational in Gloucestershire, Somerset, South Wiltshire, Hampshire, East Kent, Lincolnshire, Cornwall, West Suffolk, East Essex and London/ Surrey, with two reserve MCUs in place to ensure continuity of service during the maintenance schedule. We also provide a Nurses Support Vehicle with each MCU, which allows the nursing team to travel to and from the daily treatment locations.

Since the launch of the first MCU in 2007, the charity has saved patients a total of over 2,000,000 miles and over 170,000 hours of travel and waiting time.

The charity won a Queen’s Award for Enterprise – Innovation, in 2016. The Award is the UK’s highest accolade for business success, and was made in recognition of our achievements since the Founder, Christine Mills MBE, set up Hope for Tomorrow in 2003.

For further information on Hope for Tomorrow, please contact: 01666 505055  or visit www.hopefortomorrow.org.uk

Dr Jackson’s – Your Local Cancer Care Charity

Dr Jackson’s is the charity that helps to make a positive impact on those of us who are touched in some way by someone cose to us who has had or has cancer

Visit the website for more details. www.drjacksonscancerfund.co.uk

Dr Jackson’s Leaflet

Cancer Support Yorkshire

They can help with practical issues like information, transport and welfare rights advice. We also provide emotional support by offering counselling, complementary therapies and a range of classes, courses and support groups.

Cancer Support Yorkshire – Volunteer Flyer

Breast Cancer Haven Yorkshire

In the middle of the noise and bustle of Leeds City Centre is a small oasis of peace and tranquility. Located off a busy roundabout bordered by hotels and offices, suddenly you find yourself in a place of calm.

Breast Cancer Haven Yorkshire is a wonderful resource for anyone affected by breast cancer. It’s a one-stop shop offering a team of experienced healthcare professionals, counsellors and therapists who will support you and your loved ones every step of the way.

Breast Cancer Haven is the charity that supports women through their breast cancer treatment. When breast cancer tries to rob a woman of her individuality, her confidence or her strength, they provide a tailored package of emotional, physical and practical support that helps her hold on to them. Support is provided from centres across the country, and over the telephone.

 

What they offer
Your support programme includes 12 free hours of one-to-one appointment times. They offer assessments, counselling, and therapies to help with symptoms and side effects as well as help with healthy eating, exercise and stress reduction.
Breast Cancer Haven liaise with your medical team and tell them what they are providing to make sure that together clients are helped in the best possible way.

Debra Horsman
I met with Debra Horsman, the Centre’s clinical head, who has been at Breast Cancer Haven Yorkshire since it was established 9 years ago. Debra is well known in West Yorkshire, having spent 20 years nursing in Otley and a further 16 years as a breast cancer specialist in Bradford.

She provides the first consultation with new visitors designing a programme of support which caters for each individual.

She showed me around the Centre which has a peaceful and contemporary look. The Centre includes a welcoming reception area full of comfortable chairs and books, cosy spaces ideal for chats, well equipped therapy rooms, a light and airy kitchen where visitors can share meals, and larger rooms where they can host exercise classes.

There is so much on offer including emotional support, healthy eating advice, therapies and stress reduction classes.

 

Who can attend?
Anyone affected by breast cancer is welcome. It doesn’t matter where you live, and you don’t need a referral from your doctor. If people close to you need emotional support, they can talk to the counsellor too, free of charge.  And clients can visit whenever they need. This could be before, during or after medical treatment for breast cancer.

Sara’s story
Sara Williamson, a cancer patient from Horbury, who has already featured on our Meet the Members pages of the Yorkshire Cancer Patient Forum, is a powerful advocate for Breast Cancer Haven and now volunteers as an ambassador raising awareness and funds.

She said:

“I walked through their doors two days after having a mastectomy. No referrals are needed and patients can visit at any point in their cancer journey. It speaks volumes when you see a consultant or nurse and they recommend Breast Cancer Haven. It’s one of those best kept secrets, where you have a break from medical settings and can just be yourself.”

Breast Cancer Haven Yorkshire team
There is a small staff team supported by many enthusiastic volunteers. Lizzie Sanders, Community & Events Fundraising Officer, explained that all funds raised locally stay in Yorkshire.

One of the challenges is to raise awareness of the Centre and what it has to offer.

Breast Cancer Haven hosts popular welcome days and introduction days for cancer support groups, Women’s Institutes, employers, individuals, in fact anyone who would like to look around. These visits, along with word of mouth, and recommendations from breast care nurses, account for most of their visitors. There is little money to spend on advertising.

 

Want to help or find out more?

If you would like to help Breast Cancer Haven, or to arrange a visit, contact their Yorkshire Centre on 0113 284 7828.
Find more details at www.breastcancerhaven.org.uk

 

 

 

Hull & East Riding Breast Friends – supporting local people affected by breast cancer

 

Hull and East Riding Breast Friends is a small charity, with a big heart.

The number of services and activities offered from its busy premises in a business park in Hull, would suggest a bigger operation with a large staff team.

 However, there is just one part-time paid member of staff, and the rest of the team are volunteers.

Jayne Beck, Charity Manager, and herself a breast cancer patient, took me around their premises at the Chamberlain Business Centre.
She explained that her wage is funded by a small grant, and that every penny raised from their many fundraising events, supports the charity’s services.

Services on offer
The Wig Bank – this newly refurbished Wig Bank was originally offered from the homes of volunteers. The Wig Bank offers a choice of good quality wigs, regardless of income, to all cancer and hair loss clients in the area. For a donation of £10, clients get a wig and a treatment pack to keep their wig in tip top condition. Wigs are donated, and then washed and conditioned before going on display. No donation is ever wasted. If a wig can’t be displayed, they are donated to the local College, to give students experience in cutting and styling wigs. The Wig Bank is run by volunteers and operates on an appointment system, so clients can get the best care and support within a private and comfortable environment. Opening hours are Monday to Friday 10.30 – 2.30pm

Buddleia Therapy Room – clients can indulge in a range of beauty and complementary therapies delivered by qualified therapists who kindly donate their services. New clients who have been diagnosed with breast cancer, are offered a free introductory consultation followed by three free therapy sessions. All the volunteers are full qualified, insured and DBS checked.

Patient Gift Packs – HER Breast Friends is run by volunteers who themselves have been affected by breast cancer. They know and understand that going into hospital for breast cancer surgery can be an emotional time. They hope the packs containing a few toiletries and novelties will provide breast cancer patients with a little treat, and the knowledge that they are not alone in this journey.

Bra Bank – there is a good selection of new bras, which can be worn with or without a prosthesis, available to breast cancer patients for a small donation.  They also provide free Knitted Boobies as an alternative to a prosthesis.

Events – there’s always something going on. Whether it be a Pink Butterfly walk, a coffee morning, Christmas crafts or flower arranging. There are regular fundraising activities throughout the year in local shopping centres and garden centres.

The Pink Pamper day – the charity take over a local hotel to provide local breast cancer patients with a free day of beauty and complementary therapies, inspiring workshops, lunch, relaxation and encouragement.
Drop In Centre – available each Wednesday from 1-3pm when visitors can call in for a drink and chat, make new friends and perhaps take up a new craft or borrow a book from the Book Bank.

 

Coffee Morning – usually the first Saturday of the month between 10 am – 12 noon. Sometimes a speaker, sometimes a fun activity, but always accompanied by a piece of delicious home-made cake made by one of their gifted volunteers.

Breast Awareness Campaign Team – promoting awareness is one of the Charity’s key objectives. Jayne and the team visit local companies, social groups and events promoting breast cancer awareness, and encouraging women to access breast screening. In East Hull, uptake is as low as 28%.

Their message however, is to keep looking and checking including in-between screening, and know what is normal for you.

Jayne, says she is extremely fortunate to be working alongside such a dedicated team of volunteers which include the team of Trustees.

The Trustees have each taken on responsibility for a particular function or activity of the Charity. The fact that they are all passionate about the work of the charity helps them to achieve their ambitious targets.

The charity has now been running since 2005 and has touched and brought hope to thousands of lives. The Charity is proud to have HRH The Duchess of Kent as their patron.

This short piece cannot do justice to the work of HER Breast Friends.
For further information go to: http://www.herbreastfriends.org.uk/, tel: 01482 221368 or email generalenquiries@herbreastfriends.org.uk

Flat Friends

Flat Friends supports women living without breast reconstruction after a mastectomy, including those who face such decisions now or in the future, due to a breast cancer diagnosis or preventative surgery.

We provide support, practical advice and promote living breast free as a positive outcome.

Join our closed group on Facebook to connect with other women, make friends, share ideas and discuss issues.

 

The Colorectal Therapies HTC

The Colorectal Therapies HTC is a national network that brings together expertise in biomedical science, clinical application and commercialisation to advance the care of patients with colorectal disease. This includes colorectal cancers, inflammatory bowel disease, crohn’s disease, ulcerative colitis, diverticular disease, constipation and incontinence.

The HTC develops novel solutions and therapies that can be applied to clinical practice, and this is achieved by working with our engineering, nanotechnology and biosensing academic colleagues. Since our inception in 2013, the HTC has built up a national network of partners, drawn from academia, clinicians, industry, and patients and public, to identify challenges in surgical healthcare and devise solutions to overcome them.

Examples of some of our projectsinclude:
The IntraAbdominal Platform – this device helps surgeons to move and hold back tissues and organs to provide a clear and safe operating field.

Regenerative cell therapy – this project aims to use regenerative cells from adipose tissue to promote anastomotic healing following colorectal surgery. An anastomotic leak happens when a join in the bowel fail to heal, allowing faecal material to leak out.

Intraoperative Fluorescent Angiography – this clinical trial involves injecting a fluorescent molecule into the blood stream during surgery, which allows the blood supply to the bowel to be made visible using a near-infrared camera. This allows the surgeons to make join between areas of the bowel that are well supplied with blood, giving it the best chance of healing.

Steerable optic fibres – this project aims to increase precision and reduce the risk of complications in bowel surgery, by allowing surgeons to manoeuvre within the bowel and reduce heat related tissue damage.

Optical biopsy system – this clinical trial involved connecting a fibre optic probe to standard endoscopic biopsy forceps. This enabled the system to determine if the polyps were pre-cancerous or benign.

The Colorectal Therapies Healthcare Technology Cooperative (HTC) has been successful in its bid to host a new NIHR Medical Technology and In Vitro Diagnostic Co-operative (NIHR MIC). The NIHR Surgical MedTech Co-operative will provide support for companies developing new medical devices for use across colorectal, vascular and hepatopancreaticobiliary diseases – areas of surgery which all face substantial challenges, and which will benefit from technological innovation.

Expertise available includes engineering support for medical device and robotic technology development, nanotechnology development and biosensor development, support for designing and running clinical evaluations and health economic assessments of innovative devices.

Surgery plays a central role in the management of many medical conditions and whilst there is no shortage of surgical innovations only a few make it to clinical practice. Early clinical involvement has been identified as the biggest obstacle to successful translation and by working with our key stakeholders, the NIHR Surgical MedTech Cooperative will address many of the important unmet surgical needs and provide the expertise and resource needed to translate new technologies into patient benefit.

We are in the process of establishing a patient and public involvement (PPI) group to co-design our patient and public involvement strategy, develop capacity for patient and the public involvement, and serve as a valuable resource for researchers developing surgical technologies. The emphasis will be to ensure that technological innovation is focused on patient and clinical needs from an early stage. We have set up a short survey to better understand the needs of patients and the public – https://goo.gl/forms/HeEaV8o7WbO7svJ63

Alternatively, if you would like to talk to someone about anything related to our work and possible involvement, please contact: Vee Mapunde v.mapunde@leeds.ac.uk 0113 206 5256

The Eve Appeal

More than 21,000 women in the UK are diagnosed each year with gynaecological cancer, which equates to 58 diagnoses each day. Yet despite this, awareness levels among both women and men are startlingly low. That’s why a leading women’s cancer charity, The Eve Appeal, is highlighting the issue during Gynaecological Cancer Awareness Month in September.

Figures released by The Eve Appeal revealed alarmingly low knowledge among women of their gynaecological anatomy.

When asked to label the male anatomy seven out of 10 women could correctly identify the foreskin, penis and testes, but by contrast just 30 per cent of women surveyed by The Eve Appeal could correctly label the female anatomy. Nearly two thirds (60 per cent) could not identify the vulva and nearly half could not locate the cervix or the vagina.

The over 65s had the least knowledge – just under one in four could correctly label the female anatomy, which is a concern as this age group is the most at risk of gynaecological cancer.

It’s not just women who have low levels of knowledge. That’s why this September, The Eve Appeal’s 2017campaign is focusing on awareness among men of the signs and symptoms of gynaecological cancer, so that they can have open and frank conversations with their loved ones about an issue which is often seen as a bit of a taboo.

The Eve Appeal’s Specialist Gynaecological Cancer Information Nurse, Tracie Miles, said:

“At the Eve Appeal we’re very aware that awareness of gynaecological cancers is way too low amongst women in the UK, and for every woman there is at least one man in their lives who cares for them.

“The lack of basic knowledge about the female body or conversations around how the female anatomy works, is extremely worrying – how can we expect women to know what to look out for in terms of unexpected changes in their vagina or vulva or to be aware of the signs and symptoms of gynaecological cancer, if they’re not body aware.”

“We know from the many calls that we receive at The Eve Appeal from men, that they can play a vital role in identifying the symptoms of gynaecological cancer, prompting their partners to visit the GP. Early diagnosis really is key and can save lives.

“We’d like to encourage both men and women to have open and frank conversations, rather than hiding behind embarrassment or taboo”.

Key symptoms of gynaecological health issues to look out for include: irregular or unexpected bleeding e.g. in-between periods, after menopause or after sex; vaginal discharge that smells or may be blood stained; pain during intercourse; or change in bowel or urinary habits that lasts for more than a month e.g. bloating or need to pass water more often than usual.

The Eve Appeal’s ‘Ask Eve’ service provides information, support and advice for both men and women around the signs and symptoms of gynaecological cancers, as well as general gynaecological health issues. The Eve Appeal is the only UK charity raising awareness and funding research in all five gynaecological cancers – womb, ovarian, cervical, vaginal and vulval.

To find out more, or help fund vital research into gynaecological cancers by donating to The Eve Appeal, visit www.eveappeal.org.uk/gcam or search #IamAdam on social media.

Yorkshire Cancer Research

Yorkshire Cancer Research helps the people of Yorkshire avoid, survive and cope with cancer.

We are the only charity dedicated to addressing specific cancer problems in Yorkshire, by funding research projects right here in our region. We work to improve the prevention, diagnosis and treatment of cancer in Yorkshire so that you, your family, friends and neighbours will have the very best chance of living a long and healthy life. It’s only by working in the heart of our communities that we will learn more about the problems that exist in Yorkshire and find solutions to tackle them. suppportercare@ycr.org.uk  www.ycr.org.uk

Sir Robert Ogden Macmillan Centre

Sir Robert Ogden Macmillan Centre, St James University Hospital, Leeds

Tucked away on the St James Hospital campus in Leeds is a gem of a place for cancer patients and those caring for them.The Sir Robert Ogden Macmillan Centre (SROMC) may be slightly difficult to find for the newcomer, but it is close to the Thackray Medical Museum on Beckett Street. In any case, any of the lovely volunteers stationed within Jimmy’s will soon put you right.

Leeds Cancer Support is a service that supports anyone affected by cancer and it is based at SROMC and the Macmillan Information Centre on Level 1, Bexley Wing. Louise Fisher, Macmillan Supportive Care Coordinator, showed me around the SROMC where visitors are welcomed with a smile and a cup of tea or coffee in non -clinical surroundings. All of the services on offer are available to anyone who has been affected by cancer, and those supporting them. Complementary therapies, emotional support and information services are free of charge.

Hair Loss Workshop

While many hospitals can offer a headscarf or wig service, at SROMC they go one step further and offer a hair loss support service and workshop. Their qualified wig fitters and hairdressers offer monthly workshops aimed at men or women who are losing their hair because of cancer. At the workshop participants learn how to look after their hair and scalp before, during and after cancer treatment. Louise said there is often a temptation for a lady to decide to have her hair shaved once she has a diagnosis, but their hairdressers may advise going shorter in gradual steps. Patients who receive their care at other hospitals are welcome to phone the Centre for advice or to attend the monthly Workshop.

Help to Overcome Problems Effectively (HOPE)

The HOPE course is designed to support people living with cancer to rediscover their strengths and manage the day to day impact of their condition. It was developed by Coventry University and Macmillan Cancer Support and is offered at venues throughout the UK. Louise, who is a facilitator for HOPE, says one of the most important aspects is the coming together of people with cancer, who have time to bond and support each other. They realise they are not alone. Cancer patients may attend the course at any point in their journey – following a diagnosis – during treatment – or when their treatment has finished. The next HOPE course will be delivered on two Saturday mornings: 4 and 11 November. Booking is essential.

The Leeds Cancer Support Programme

The programme is offered for patients, families and carers and is held at SROMC on the second Monday of each month from 5.30-7.30pm. The programme is made up of six sessions spread over six months. Each session covers a different issue, relevant to patients and carers affected by cancer. Participants are welcome to start the programme at any stage. The evening starts with a light buffet followed by a guest speaker discussing that month’s topic. The second half of the session gives the opportunity to break into separate patient and carer groups to share stories and learn from each other. Louise added that this can be one of the few times that carers have the chance to talk to other carers.

This is just a short summary of the services on offer.

There are also complementary therapies, emotional support such as counselling and one-to-one support, natural healing, meditation and relaxation and hypnotherapy.

The Centre also hosts various support groups.

For booking any of the opportunities please contact the Sir Robert Ogden Macmillan Centre on 0113 206 6498

Email: leedsth-tr.cancersupport@nhs.net

 

Breast Cancer Haven

Breast Cancer Haven is a national charity offering free emotional, physical and practical support to anyone affected by breast cancer, from its centres across the country.

Yorkshire Cancer Patient Forum Information – Breast Cancer Haven

STAR Bereavement Support Service

Could you help STAR Bereavement who support children and young people who have been bereaved, and who live in the Wakefield area?

STAR Bereavement, who provide one to one support, group support and family days, are looking for volunteer Trustees to help run this much-needed charity. They have recently been awarded a Children In Need grant to fund Helen Elford their bereavement support practitioner for three years. Helen understands only too well the need for support, having been a young widow with children back in 2015. Families like the fact that Helen can closely identify with how they are feeling and what they are going through. Service co-ordinator Claire Taylor says she would love to hear from volunteers who could help to fundraise or with PR.

Funding cutbacks mean Claire and Helen try to use their funded hours to support families but this means they have little time to raise awareness of the service or to try and bring in additional income. In the past there was up to nine members of staff involved in this busy service. Families usually hear about the service from their local school, but they are also encouraged to refer themselves. Claire said families talk about feeling isolated and are generally unaware of what services are available.

If you could help STAR Bereavement by being a volunteer fundraiser or Trustee, please contact them on 01924 787384 or email admin@starwakefield.org.uk or see their website: www.starwakefield.org.uk

Weston Park Cancer Information and Support Centre

Website address is: www.cancersupportcentre.co.uk

Telephone number is: 0114 226 5666

We are open Monday – Friday 9.00am – 5.00pm.

We offer a range of services run by healthcare professionals to support anyone affected by cancer; patient, family or friend.

Our drop-in service is open Monday to Friday 9am to 5pm, no appointment necessary.

Why not call in for a coffee and a chat or you can find out more about our services by clicking on the links below:

Urostomy Association

The Urostomy Association is a UK registered national charity representing the interest of people with a urinary diversion.
As this is not a subject which is openly or readily discussed, there is a general lack of information about this condition.
The Association offers support, reassurance and practical information to anyone who may be about to undergo, or who has already had surgery.
Appropriate support and information is also offered to families and carers both before and after surgery.
They offer local branches, home and hospital visiting and a Journal published three times a year.

Their Website can be viewed here

CLIC Sargent

When cancer strikes young lives CLIC Sargent helps families limit the damage it causes beyond their health. We provide specialist support, to help and guide each young cancer patient and their family. We will fight tirelessly for them, individually, locally and nationally, so they can focus on the important things.

For further information please visit our website www.clicsargent.org.uk and read the attached documents. If you prefer you can ring CLIC Sargent for advice on 0300 330 0803.

How We Help – Young People
How We Help – Parents

NET Patient Foundation

NET Patient Foundation is a UK wide charity with a purpose to provide local support and information to patients and families from diagnosis, enabling access to the best care and treatment, whilst stimulating Neuroendocrine Cancer research, increasing national awareness and influencing improvements in outcomes.

The Foundation has information on its website, and organises regular patient information meetings and local ‘NET Natter’ groups. They also have a library of information, including a “Guide to Living with NETs”. This information can be downloaded directly from the website or if you would like to order hardcopies of any information, please contact NET Patient Foundation.

Find us at www.netpatientfoundation.org

Contact the office 01926 883487 or hello@netpatientfoundation.org

Speak with our nurses 0800 434 6476 or nurses@netpatientfoundation.org