Get Involved

 Cancer Patient and Public Involvement Group

What is Patient and Public Involvement?

Patients are at the heart of everything that takes places at all the sites across LTHT: St James, Leeds General Infirmary, Chapel Allerton, Seacroft etc. and we want to do the best for our patients both in your clinical care but also your overall experience. We hope to do this by continually improving our practices by listening to our patients.

 Within the Leeds Clinical Research Facility we have a number of Patient and Public Involvement (PPI) groups already assisting us with research studies within Cancer , Cardiovascular , Dental and Musculoskeletal. Our PPI members help us by advising on , for example , patient information, new study ideas , practical arrangements and improving how the findings are communicated to the wider public.

 Can you help us ?

 If you would like to be involved with the CANCER PPI group (you can be a patient,relative , friend – anyone who is willing to be involved and help us to improve cancer research for now and in the future ). This is entirely voluntary and you can do as little or as much as you would like.

 Meetings take place about every 3 months at the St James Hospital site in the

Wellcome Trust Brenner Building and the meeting dates for 2018 are:

 Tuesday 17th April at 2pm to 4:30pm

Wednesday 18th July at 2pm to 4:30pm

Tuesday 23rd October at 2pm to 4:30pm

 If you would like to attend can you please contact Zaira by e mail : zaira.cantara@ nihr.ac.uk or e mail leedsth-trCRF@nhs.net Or telephone Zaira on 0113 2060441 as refreshments are provided so we need an idea of number.

See the leaflet here Cancer Patient flyer

Join Your Local GP Practice Patient Participation Group

Many Forum members will already be members of their local GP Practice Patient Participation Group (PPGs). However, there are many members of cancer support groups who are not aware of this opportunity to be involved at a grass root level.

A Patient Participation Group is a group of patients who are interested in health and healthcare issues, who want to get involved with and support the running of their local GP practice. Every GP practice has to have a Patient Participation Group. These groups meet regularly with practice staff to support health promotion and understand and respond to the needs of all the different patients who use the practice. Some groups operate ‘virtual’ meetings to allow participants to get involved online or via Facebook.

The Patient Participation Group is a forum to improve the practice and is not a place to take individual concerns or complaints. Guidance for each area can be found if you search for your local Clinical Commissioning Group (CCG) website.  Guidance at Leeds West CCG has a very clear leaflet entitled –GP Practice Patient Participation Groups. Pop into your local doctors’ surgery to find out how to get involved.

Another way of getting involved is to be part of a programme which reviews services within hospitals.

The Quality Surveillance Review Programme is probably better known as the service user peer reviews.

There are around 55 reviews of cancer services taking place across the country per year.

If you have taken part before, you will not need to reapply and repeat the training.

An application form, and role description is below.

Quality Surveillance Team application form

Patients making a difference – Leeds Teaching Hospitals NHS Trust

 Leeds Teaching Hospitals NHS Trust (LTHT) includes all of the hospitals in Leeds, who work together in a multi-site hospital partnership which is unique in the UK.

LTHT is one of the largest teaching hospitals in Europe, a regional and national centre for specialist treatment, a world renowned biomedical research facility, a leading clinical trials research unit and also the local hospital for the Leeds community.

The Patient Reference Group supports LTHT to make decisions about how to improve the experience of patients, carers and members of the public, while in their care.

There is an opportunity to join a workshop looking at Quality Improvement.

What needs to improve, and how, to improve patient experience?

The workshop is open to patients and carers who have not already taken part in Quality Improvement.

Full details are below:

PRG Making Quality Count Flyer 2017